it is a inherited genetic disorder that cause thick sticky musus in the lungs and digestive system
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what is the causes of CF
it is genetic
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what is the physical impact
they have low energy due to the digestion system be blocked ; they dont do as much activities ; in pain from the infection that the mucus cause and the constant coughing ; they are small and start puberty later
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what is a interlectual impact of cf
time of school for appointment causes the child to miss out on lessons so they may drop grades ; learn knew things about the disorder ; but this disorder should affect the brain so they shouldnt be impacted on their learning
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the emotional impacts
frustrated because they cant do activities with friends (lack of energy) ; annoyed of the coughing and pain of infections ; upset because they arent as independent as other their age ; embarressed as they know they are different to others
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social impact
hard to maintain friends ships because they spend less time at school and dont join in in activities with friends ; wont go out as much due to lack of energy and being embarrssed;
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financial impact
get disability benefits to help pay for different things that they may need; the pay for equiptment will cost them money so they ; travelling to appointment will cost ; parking will cost ;
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risks
bullying, abuse, isolaton
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legalations
equality act
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syptoms
salty skin, small, poor weight gain, imflation in stomach area due to infection, constand coughing . chest infection, weakess, late puberty
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medication
anti biotics, painkillers, precusions, dietry suppliments,
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relevant practitioners
GP; thysiotherapy, doctors
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eductaional barriers
Poor provision e.g. Not providing a private room/ bath room for percussion.
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employment barriers
Employers may be inflexible and make it difficult for people with CF to take time off for hospital appointments.;Flexi-time to enable someone with CF to not work when they are weak.
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societal barriers
Ignorance - lack of knowledge about CF which leads to low expectations from teachers when CF does not affect intellect.; Assuming child cannot participate in physical activity when in fact it is encouraged to dislodge mucus.;
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environmental barriers
Specialist CF clinic may be a long way from the family home and difficult to access. ; if in wheel chair they wont have the ability to go up and down steps or stairs and paths are sometime too narrow to go down
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economic barriers ;
Opportunities to work may be limited which leads to a reliance on benefits.;Specialist CF clinic may be a long way from the family home and so incur travelling and parking costs to attend.;
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