multiple sclerosis

multiple sclerosis

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NHS
National Institute for
Clinical Excellence
Multiple sclerosis
Understanding NICE guidance ­ information for
people with multiple sclerosis, their families and
carers, and the public
November 2003

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Multiple sclerosis
Understanding NICE guidance ­ information for people with
multiple sclerosis, their families and carers, and the public
Issue date: November 2003
This booklet was produced in association with the MS Trust
(01462 476700; www.mstrust.org.uk) and the Multiple Sclerosis
Society (0208 438 0700; www.mssociety.org.uk)
To order copies
Copies of this booklet can be ordered from the NHS Response
Line; telephone 0870 1555 455 and quote reference number
N0368. A version in English only is also available, quote
reference N0367.…read more

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Contents
About this information 2
Clinical guidelines 2
What the recommendations cover 3
How guidelines are used in the NHS 5
If you want to read the other versions of this 6
guideline
Explanation of medical words and terms 6
Key messages for you and your health workers 7
Multiple sclerosis (MS) 9
Different types of MS 10
Diagnosis 11
Immediately after MS is diagnosed 14
Help within the NHS 15
Who can help 15
Encouraging independence and self-help 17
Medical notes 22
Treating and…read more

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About this information
This information describes the guidance that the
National Institute for Clinical Excellence (called NICE
for short) has issued to the NHS on the management
of multiple sclerosis (MS) in the community and in
hospitals. It is based on Multiple sclerosis:
management in primary and secondary care, which is
a clinical guideline produced by NICE for doctors,
nurses and others working in the NHS in England and
Wales.…read more

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The guideline development process ­ information for
the public and the NHS from the website, or you can
order a copy by phoning the NHS Response Line on
0870 1555 455 (quote reference number N0038).
What the recommendations cover
NICE clinical guidelines can look at different areas of
diagnosis, treatment, care, self-help or a combination
of these. The areas that a guideline covers depend on
the topic.…read more

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Currently, not all the services outlined are available in
all parts of the country. The NICE guideline has
identified some areas that are priorities ­ these are
shown as the key recommendations on pages 7­9.
The guideline does not include recommendations
about care that should be provided by social services.
However, NHS staff ­ particularly those working in the
community ­ work closely with staff in social services.…read more

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TopicID=316&AreaID=2
91&LinkID=316 for links to other sources of
information on MS).
If you have questions about the specific treatments
and options covered, talk to your health worker
(doctor, nurse, therapist or other person depending on
what it is you want to know).
How guidelines are used in the NHS
In general, health workers in the NHS are expected to
follow NICE's clinical guidelines.…read more

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If you want to read the other versions of this
guideline
There are three versions of this guideline:
· this one
· the `NICE guideline', Multiple sclerosis: management
in primary and secondary care, which has been
issued to people working in the NHS
· the full guideline, which contains all the details of
the guideline recommendations, how they were
developed and information about the evidence on
which they were based.
All versions of the guideline are available from the
NICE website (www.nice.org.uk).…read more

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Key messages for you and your
health workers
The guideline that NICE has issued to the NHS
contains many specific recommendations about the
sort of care a person with MS should receive in the
NHS and these are covered on the following pages.
Some of the recommendations in the guideline are
known as `key priorities for implementation'. They
are particularly important and should be put in place
as a priority.…read more

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Every person who is suspected of having MS should
be rapidly* referred to a specialist neurology
service. Every person should be seen again after all
investigations needed to make a diagnosis have
been completed. People should be told how long
they have to wait for the first referral and for the
follow-up appointment. The extent to which these
dates are kept to should be monitored.…read more

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