ADHD Patients and Carers


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Understanding NICE guidance
Information for people who use NHS services
Attention deficit hyperactivity
NICE `clinical This booklet is about the care and treatment of people with attention
guidelines' advise deficit hyperactivity disorder (ADHD for short) in the NHS in England and
Wales. It explains guidance (advice) from NICE (the National Institute for
the NHS on caring
Health and Clinical Excellence). It is mainly written for parents of children
for people with with ADHD but there is also information for young people and adults with
specific conditions ADHD. It may also be useful for anyone with an interest in the condition.
or diseases and the The booklet aims to help you understand the care and treatment options
treatments they that should be available in the NHS. It does not describe ADHD or the
should receive. treatments for it in detail. A member of your child's healthcare team, or
your healthcare team, should discuss these with you. There are examples
of questions you could ask throughout this booklet to help you with
this. Some sources of further information and support are on page 20.
Medical terms printed in bold type are explained on pages 18­19.
Information about NICE clinical guideline 72
Issue date: September 2008

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Care for all people with ADHD 3
Information for parents of children with ADHD 5
Information for young people with ADHD 11
Information for adults with ADHD 13
About medication 15
Explanation of medical words and terms 18
More information 20
About NICE 20
The advice in the NICE guideline covers:
· the care, treatment and support that children, young people and
adults with ADHD should be offered
· how families and carers can support people with ADHD.…read more

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Care for all people with ADHD
Treatment and care should take into account the personal needs and
preferences of all people with ADHD, and their families or carers, where
appropriate. People with ADHD have the right to be fully informed and
to make decisions in partnership with their healthcare team. To help with
this, the person's healthcare team should give them information they can
understand and that is relevant to their circumstances.…read more

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ADHD is a common behavioural disorder in children and young people.
It usually starts in early childhood and some people will continue to
have ADHD as adults. Severe ADHD is sometimes known as
`hyperkinetic disorder'.…read more

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Information for parents of children with ADHD
What should happen if I think my child has ADHD?
If you or someone else (such as a teacher) thinks that your child's
behaviour could be a sign of ADHD, it is likely that you will visit your
GP first. If your GP thinks that your child may have ADHD, they should
ask you and your child about how your child's behaviour is affecting
their everyday life.…read more

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What advice and support can we expect after diagnosis
of ADHD?
Your specialist or another healthcare professional should give you advice
on having clear rules about behaviour, encouraging and rewarding your
child's good behaviour, and making sure that your child's day has structure
and routine.
Your specialist should offer you advice about a good diet and regular
exercise for your child.…read more

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What treatment should my child be offered?
The treatment your child should be offered will depend on how old Some treatments
they are and their symptoms of ADHD. A specialist should give your may not be
child most of their treatment and care when they are first diagnosed suitable for your
with ADHD, but after this your GP may provide some care.…read more

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About courses for parents
The aim of the course is to equip parents with the necessary skills so
that they can help to improve their child's behaviour.
A course is about 8­12 sessions and usually takes place in a group
with other parents. The course will help parents to understand their
own and their child's feelings and behaviour. It is a chance to meet
other people in a similar situation, help one another and share
experiences.…read more

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Treatment for school-age children with ADHD
If your child is old enough to go to school, they should not usually be If a treatment
offered medication first. described in this
Your child's teachers should be informed about how to support children booklet appears
with ADHD. If they have also had training about ADHD, they should be suitable for your
able to use a number of methods to help your child in class.…read more

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After this, your GP can continue to prescribe your child's medication
and check how your child is doing. As well as your child being offered
medication, you should also be offered a place on a course to help
parents with their child's behaviour (see box on page 8, `About courses
for parents').
If you do not want your child to take medication, or if your child
does not want to take it, your specialist should talk to you about this.…read more


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